Chronic Heterotopia is a new work-in-progress series of crip futurist assisted-self portraits which uses digital collage to re-contextualise portraits in imagined landscapes and asks us to consider those living on the margins, in heterotopias of the sick when imagining the future. It explores the idea of the heterotopia in relation to chronic illness and crip time.
I will be developing these ideas into an audio-visual piece using archival footage from my recent hospitalisation for neurosurgery. I will also be experimenting with ways of making the project tactile.
When I'm in hospital, Oscar and I will document the process. I have complex PTSD and having these documents allows me to creatively work through the trauma afterwards.
When I became sick, my body changed drastically. As we interact with and experience the world via our bodies my whole existence changed.